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Endometriosis Beyond the Pelvis: A Patient’s Guide

Learn about endometriosis outside the pelvis—symptoms, organ involvement, and why multidisciplinary care is essential for patients.

Young woman holds the upper part of the abdomen due to sudden pain.

This series unpacks the lesser-known realities of endometriosis when it spreads beyond the reproductive organs. Beginning with deep infiltrating endometriosis, it takes patients through the ways the disease can affect organs like the bowel, bladder, ureters, diaphragm, and even nerves. Along the way, readers learn symptoms to look for, the ways endometriosis can complicate diagnosis and treatment, and why having a multidisciplinary care team is crucial for optimal management.

Posts in This Series (0)

1

What is Deep Infiltrating Endometriosis? Understanding the Basics

Coming Soon

Discover deep infiltrating endometriosis, its symptoms, and diagnosis. Learn how it differs from other types of endometriosis for better management.

2

How Endometriosis Can Affect Your Bowel and Digestion

Coming Soon

Learn how endometriosis affects bowel health and digestion. Discover symptoms, diagnosis challenges, and treatment options. Get informed today!

3

Bladder, Ureter, and Urinary Symptoms You Didn’t Expect

Coming Soon

Discover how urinary tract endometriosis affects symptoms like painful urination, and learn about evaluation and treatment. Explore expert insights!

4

Beyond the Abdomen: Endometriosis in the Diaphragm and Nerves

Coming Soon

Discover rare symptoms of endometriosis involving the diaphragm and nerves. Understand the importance of accurate diagnosis and emerging research.

5

Why Multidisciplinary Care is Essential for Complex Endometriosis

Coming Soon

Discover why multidisciplinary care is vital for managing complex endometriosis and enhancing quality of life. Learn more in our latest research overview.

Endometriosis can extend far beyond pelvic organs, which is why symptoms that look “gastro,” urinary, nerve-related, or even chest/shoulder pain still deserve to be taken seriously. The takeaway is simple: your pattern of symptoms matters, and it’s not a personal failure if standard treatments haven’t helped.


Clear mapping of disease and function—paired with a coordinated, multidisciplinary plan—gives you the best chance at lasting relief while protecting fertility, organs, and quality of life. You can ask for care that matches the complexity of what you’re feeling.

Get answers for whole-body symptoms

If your pain, GI issues, urinary symptoms, or even shoulder/nerve pain cycle with your period, it may be endometriosis beyond the pelvis—even when tests come back “normal.” Our specialists evaluate deep infiltrating and multi-organ endometriosis and coordinate a team-based plan for bowel, bladder/ur

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Have a question?

Dr. Steven Vasilev delivers best-in-class endometriosis guidance and a personalized treatment plan—built on evidence and your unique biology.


Led by Steven Vasilev, MD—an internationally recognized endometriosis specialist & MIGS surgeon—Lotus Endometriosis Institute is virtual-forward, with many patients traveling nationally for care. Clinical evaluation and surgical treatment are provided in California.

Santa Monica, CA

2121 Santa Monica Blvd, Santa Monica, CA 90404

Operating Hours

8:00 am - 5:00 pm
Monday - Friday

Arroyo Grande, CA

154 Traffic Way, Arroyo Grande, CA 93420